St Joseph's Hospital in Phoenix Arizona is well known for being a leader in the field of neurological disorders, injuries, etc with thanks to Barrow Neurological Institute. My opinion however, is not as praising. I adore Phoenix Children's Hospital. I will ALWAYS have a huge place in my heart because without the doctors, nurses, and staff, Emma would not be alive today. Now, due to insurance and I am sure, convenience to the Rehab Services clinic, Emma's imaging studies are done at St. Joe's. Not a fan. Frankly, neither is my daughter. Last month she had an ABR test (An Auditory Brain Stem Response test, which came back NORMAL, thank the gods!) under sedation. She was, understandbly upset. She despises the mask, the way she feels afterward and feels like I betrayed her. She is starting to get to where she shakes when she gets to the hospital and starts getting extremely anxious. Her parting words the last time, slurred from the after effects of the sedation, were "I HATE that hospital". Honestly, I can't blame her. I do too.
The last time she had a CT scan there (routine, not when she has come by the ambulance after a surgery), the CT techs were rushed and didn't really want to try. The copped out and she had to go under sedation. I was pissed. I know she can lay still. Well, on Wednesday of this past week, she needed another routine CT Scan and Shunt series (to look at her shunt that is on her brain and goes to her stomach to keep the fluid off of her brain) and I told the nurse and techs that I demand they give her the extra time she needs to feel comfortable and not rush her. If that means SCHEDULING her longer than 20 minutes, SO BE IT. I promised Emma she will not see the doctor with the gas mask. And I held up my promise and I am so so so proud of her! She did need extra time to get on the CT Scanner. The tech was AWESOME and allowed her to play with the buttons and move table. She put her doll through the scanner and even me too! She was such a big girl and laid so still and didn't cry! I wanted to cry just out of seeing her being such a big girl! She was so proud of herself, rightly so! and walked around telling everybody she "Is a Good Job!". Then she got her Xrays and saw her skeleton and was so excited! Heck, I was so excited to see it. I haven't seen her skull since surgery and it's beautiful. I am so beyond proud of my sweet, beautiful daughter.
She is amazing! Each and every day she amazes me with her spunk, spark and happiness! I told the tech, Emma isn't stupid and oblivious, speak to her and explain to HER what we are doing. Do not talk over my daughter. It will make her upset.
Le sigh. She is growing up. I am getting old. She is getting to where she doesn't want to hold my hand anymore. Thankfully she still loves hugs and kisses and saying I love you. I cherish each day. Each hug. Each kiss. Each I Love You. and Each moment.